Friday 30th April
What happened I hear you ask, well I just decided hospital was such a lovely place and i enjoy operations so much that i'd have an extra op and stay an extra day!
What really happened is that after my first operation to move my ovaries (yes finally convinced bupa they were worth saving) some stupid nurse did not listen to me when i said i really needed to go to the toilet but was having trouble doing so, to the point i had over 1.5 litres of fluid in my bladder which was squishing my newly positioned ovaries and so i was in agony! Thanks to that stupid nurse bupa have had to pay for another surgery and i now have to have a catheter for a few days to give my bladder a rest as its been stretched. Quite a cool party trick though, i can literally pee at the turn of a tap.
I definitely do look like a stab victim now, two chest wounds (one with a rather large bulge) and four stomach ones, i also look like a pot bellied pig where my tummy is so bloated. The catheter, thats down strapped to my leg all in all a rather beautiful sight, not but to be honest i'm so glad that bits over that i'm not really worried.
I couldnt bring myself to cancel the girly pamper party i had planned for tonight although goodness only knows what bit of me they can pamper now. I'm really excited about having everyone round but dont want to scare people or fall asleep at 7.10pm on the sofa but i guess it may happen so apologies girlies now. I may risk a glass of champers though and watch it come out the other end, how bizarre. Thanks hubby he went and got that for me today and i'm wearing one of my new trackies. Lucky me hubby is being truly awesome, cant wait for the chocolate cake to emerge from the kitchen, not sure betty is so keen though she thinks there is going to be an awful lot of mess.
Hope i dont scare connor too much when he comes home from school but so looking forward to seeing him.
So what happens now, catheter until monday and then chemo and radiotherapy start tuesday. 8am start at the hospital. Supposed to look at hot tubs at the weekend I'll let you know if we make it!
Tutty bye for now i need to go do some work.
T
Friday, April 30, 2010
Tuesday, April 27, 2010
Another day in Paradise (yeah right make that Hospital!)
Bad day today so will be glad when its over, not slept well as this stupid thing in my chest hurts and cant bear to touch the skin. I look grotesque and it makes me want to cry especially when i know i'm going to have four new wounds to look at later so i'm trying really hard to be brave and not think about it, i'm saving my ovaries which is much more important right.
There is of course something good you can take out of every day, i have a gaggle of superwomen that want to come to the hospital with me, which makes me feel very special and hubby comes back later which is great but even better is hes got me lots of prezzies to cheer me up.
And best of all (well right now cos i'm thirsty) is that i just read my admittance letter and i cant have a drink after 8am when i thought it would be after midnight so betty has run off to make me a big mug of tea. Yippee!
I cant believe how many people are reading this but its really really nice to know you are, kind of comforting even though i know it must be distressing but honestly i'm still bearing up.
Write tomorrow when back from hospital hopefully.
x
There is of course something good you can take out of every day, i have a gaggle of superwomen that want to come to the hospital with me, which makes me feel very special and hubby comes back later which is great but even better is hes got me lots of prezzies to cheer me up.
And best of all (well right now cos i'm thirsty) is that i just read my admittance letter and i cant have a drink after 8am when i thought it would be after midnight so betty has run off to make me a big mug of tea. Yippee!
I cant believe how many people are reading this but its really really nice to know you are, kind of comforting even though i know it must be distressing but honestly i'm still bearing up.
Write tomorrow when back from hospital hopefully.
x
Ouch!
ok looking like i've been shot or something, bleeding wounds , a huge lump in my chest and my blooming arm is killing me, totally no idea why that is but feeling a bit worse for wear!
Betty and i had a giggle at least though (told you i wasnt going to lose my sense of humour) the nurse was asking usual admission questions and i said she lived with me but the way i said it made her sound like my partner (yeah yeah dream on guys) so we had a bit of a laugh with the nurse about that one. Betty's Bitch has got a bit of a ring to it though dont you think.
V. Nervous, starting to get pathological fear of everything to do with hospitals which i'd better get over by tomorrow morning.
Got some lovely cards at home waiting for me when i got back and a bunch of flowers, thanks Charlie and Clive, honestly you lot are brilliant. Getting worried if any of you get sick that i can live up to the amazing example you are all giving me.
No Hubby or Boy tonight, going to miss them both but at least i will probably get some peaceful sleep rather than being pushed out of bed and i wont be able to fall asleep with Connor and then spend the rest of the night trying to go back to sleep!
;-)
Betty and i had a giggle at least though (told you i wasnt going to lose my sense of humour) the nurse was asking usual admission questions and i said she lived with me but the way i said it made her sound like my partner (yeah yeah dream on guys) so we had a bit of a laugh with the nurse about that one. Betty's Bitch has got a bit of a ring to it though dont you think.
V. Nervous, starting to get pathological fear of everything to do with hospitals which i'd better get over by tomorrow morning.
Got some lovely cards at home waiting for me when i got back and a bunch of flowers, thanks Charlie and Clive, honestly you lot are brilliant. Getting worried if any of you get sick that i can live up to the amazing example you are all giving me.
No Hubby or Boy tonight, going to miss them both but at least i will probably get some peaceful sleep rather than being pushed out of bed and i wont be able to fall asleep with Connor and then spend the rest of the night trying to go back to sleep!
;-)
Monday, April 26, 2010
Another day down!
Phew got through another day, just been filling in 100's of forms ready for the next couple of days in hospital, soon i think they wont have enough space for me to list all my previous surgeries....
I am rather speechless today, I always knew Cisco was the best company to work for but today they proved it 1000%, the support in getting my surgery sorted with bupa on wednesday, well I am truly truly greatful. Gonna blub if i carry on thinking about it so I'll just leave it there.
Today was oncology, this was a posh depressing place with people attached to poison machines, could not wait to leave there, cant explain my pathological fear of chemo, i know and everyone is telling me the radiotherapy will be worse but its the chemo that is worrying me, anyway not as bad as i thought, only 4 days a week, as annabelle said thats nearly only half a week, great way to look at it so thats what i'm going to do. More blood, honestly does no one talk to each other, they all want their own piece of me.
Goodness the power of a blog, so many messages today with offers of visits and tea, bless you all and I do expect you all to come visit me, think i shall be like the queen taking visitors in my new pagoda!
Connor is getting a lot of late nights and now two sleepovers as we figured he didnt need to know about me being in hospital for the next couple of days, I'm worried that we are over compensating but just trying to make it ok for him and minimise the impact. He seems to be coping so well bless him, sure he's loving seeing all his mates so much. Admitted he quite likes Casey tonight, well cute.
Cheerio for now all, thanks for all the great support and for reading my blog, glad you are all enjoying it (well you know what i mean).
x
I am rather speechless today, I always knew Cisco was the best company to work for but today they proved it 1000%, the support in getting my surgery sorted with bupa on wednesday, well I am truly truly greatful. Gonna blub if i carry on thinking about it so I'll just leave it there.
Today was oncology, this was a posh depressing place with people attached to poison machines, could not wait to leave there, cant explain my pathological fear of chemo, i know and everyone is telling me the radiotherapy will be worse but its the chemo that is worrying me, anyway not as bad as i thought, only 4 days a week, as annabelle said thats nearly only half a week, great way to look at it so thats what i'm going to do. More blood, honestly does no one talk to each other, they all want their own piece of me.
Goodness the power of a blog, so many messages today with offers of visits and tea, bless you all and I do expect you all to come visit me, think i shall be like the queen taking visitors in my new pagoda!
Connor is getting a lot of late nights and now two sleepovers as we figured he didnt need to know about me being in hospital for the next couple of days, I'm worried that we are over compensating but just trying to make it ok for him and minimise the impact. He seems to be coping so well bless him, sure he's loving seeing all his mates so much. Admitted he quite likes Casey tonight, well cute.
Cheerio for now all, thanks for all the great support and for reading my blog, glad you are all enjoying it (well you know what i mean).
x
Sunday, April 25, 2010
The week ahead.....
Looms with uncertainty.
The 40th was lovely, Vicky looked amazing, kind of sad though, last night with hubby as the "old me" for a while. Then rushed around like a looney since then, had to drop hubby at airport on saturday morning (sad) then football, football and more football. Managed to sandwich in a visit to my lovely uncle and aunt in beautiful upper slaughter and a visit to my amazing friends (you know who you are but i dont want to embarrass you) who have even though they have a lot to deal with themselves been absolutely rocks for me.
Connor asked me if my cancer was catching but given i've had a cuddle or six since so i guess he did believe me when i said no ;-)
Been sorting my car out tonight as that goes tomorrow, cant believe i wont be driving after this week for a while but hey its going to be great to have something new to look forward to at the end of it.
Now its late and i'm feeling kind of lonely and rather nervous about the week ahead. Will I sort out my ovaries, will i get through the chemo conversation tomorrow or the hospital visits, will i win the blooming lottery, at least that might help!!!! Well you know what folks i will, felt very angry about certain people this weekend, namely my parents but you know what its so wasted on them that i've decided to take that energy and use it to get me through the next week so its actually probably quite a good thing.
So its goodnight from me, the close to an eventful week, i cant believe how much has changed but I think its probably going to change even more next week so better get used to it.
;-)
The 40th was lovely, Vicky looked amazing, kind of sad though, last night with hubby as the "old me" for a while. Then rushed around like a looney since then, had to drop hubby at airport on saturday morning (sad) then football, football and more football. Managed to sandwich in a visit to my lovely uncle and aunt in beautiful upper slaughter and a visit to my amazing friends (you know who you are but i dont want to embarrass you) who have even though they have a lot to deal with themselves been absolutely rocks for me.
Connor asked me if my cancer was catching but given i've had a cuddle or six since so i guess he did believe me when i said no ;-)
Been sorting my car out tonight as that goes tomorrow, cant believe i wont be driving after this week for a while but hey its going to be great to have something new to look forward to at the end of it.
Now its late and i'm feeling kind of lonely and rather nervous about the week ahead. Will I sort out my ovaries, will i get through the chemo conversation tomorrow or the hospital visits, will i win the blooming lottery, at least that might help!!!! Well you know what folks i will, felt very angry about certain people this weekend, namely my parents but you know what its so wasted on them that i've decided to take that energy and use it to get me through the next week so its actually probably quite a good thing.
So its goodnight from me, the close to an eventful week, i cant believe how much has changed but I think its probably going to change even more next week so better get used to it.
;-)
Friday, April 23, 2010
UNFAIR!!!!!
Just when i was having a good day BUPA have to come along and spoil it! Seems like my ovaries arent worth saving, its too experimental and preventative and not actually whats wrong with me so they dont want to pay for it.....
Big time peed off and cried down the phone at the bupa guy, serves him right. I dont have £9k tucked in my back pocket or up my botty to pay for it.
What happens next, no idea right now
Mrs Sad from Windlesham
;-(
Big time peed off and cried down the phone at the bupa guy, serves him right. I dont have £9k tucked in my back pocket or up my botty to pay for it.
What happens next, no idea right now
Mrs Sad from Windlesham
;-(
Thought i'd never say this!!!!
Only joking of course but got to tell you my hubby has been so wonderful.......
I'm loving his little ways of cheering me up and my friends too you are keeping me, and him strong.
How cool that i dont have any appointments today only trouble is hubby trying to get me to do some exercise - yuk, big yuk I prefer dreaming about hot tubs.
As you can tell a better day today which is why i wanted to post this because i know i have some new little followers so you need to know its not all doom and gloom and you're all bloody right I am super super strong and i'm not going to let a little pain in the ass get me down. Boom Boom!!
P.S. Wondering why the nutella name, well its not because i like chocolate spread or some bad attempt at another botty joke its cos it was my nickname at school as my middle name is Nadella and it just felt like the right name, bit jokey, kind of not me because its not Tania. Hope that makes sense.
Love to you all
I'm loving his little ways of cheering me up and my friends too you are keeping me, and him strong.
How cool that i dont have any appointments today only trouble is hubby trying to get me to do some exercise - yuk, big yuk I prefer dreaming about hot tubs.
As you can tell a better day today which is why i wanted to post this because i know i have some new little followers so you need to know its not all doom and gloom and you're all bloody right I am super super strong and i'm not going to let a little pain in the ass get me down. Boom Boom!!
P.S. Wondering why the nutella name, well its not because i like chocolate spread or some bad attempt at another botty joke its cos it was my nickname at school as my middle name is Nadella and it just felt like the right name, bit jokey, kind of not me because its not Tania. Hope that makes sense.
Love to you all
Thursday, April 22, 2010
Frustrated of Windlesham!!!!
No internet connection since yesterday, only just got reconnected, soo frustrating!
A lot has happened the last couple of days, first of all went to see the gynecologist yesterday, I didnt realise that what he needed to do was quite so drastic, involves surgery and cutting holes all over my tummy, at least they are small i suppose. Apparently i'm the youngest person hes ever seen with this cancer and so whilst he's done this type of operation i am making medical history. The other consultant wants to come and watch, bizarre, i mean personally i'd rather be watching 24 or something. Need to take blood, forget it poor nurse fails miserably and asks me to come back later.
I then visited possibly the most depressing place i've ever been to for my "mould". Basically putty between the butt cheeks, very nice. St Lukes Cancer Center, unfortunately a place i'm going to have to visit every darn day from now on.
Then back to reality, FY'11 planning again in the afternoon, actually it was a refreshing change from Cancer talk and we got a lot done so good acheivement. Quite late by this point but hospital still awaits my blood so off i go, success this time, another appointment ticked off the list.
Friends came to see me last night, lovely evening, bit tearful in places but really nice although did have a incy bitty headache this morning when i woke up, thanks Michelle for dragging me to the games room ;-)
Then panicked as they never seem to be able to get into my veins at the minute (dehydrated!)and was due for the special radiotherapy CT scan today. Drank gallons of water to rehydrate and off we went back to St. Luke's. Some little tattoo's today (so they can line you up in the same place each day) dye flushed through the veins and some barium up the bottom. Think thats a good summary. OK another thing ticked off the list.
Sat on a bench and ate a bath bun afterwards, highlight of the day ;-) Phil dragged me into the mini garage to cheer me up and get me thinking about something else other than trying to tell connor my "news". Just got to get rid of my car now, actually very excited.
Darned internet got in the way after that, took me about two hours to get reconnected, just about managed to get Connor to swimming in between. Connor asked me why i had a plaster on my arm, here goes i think, " we'll chat about it when we get home i say, i had to go to the doctors today".
So I tell Connor, and how did he take it? no bloomin' reaction hardly, well not externally or yet i mean i look the same right so maybe he cant absorb it. Phil says have you mentioned the "C" word, i admit no, he says ive got to tell connor, so i do, reaction, oh you've got Cancer will you lose your hair? I reassure him probably no and he says "can i have some ribena mummy". Literally still no reaction at all, all that in my head and nothing i guess we may see something later but its almost an anticlimax, can daddy put him to bed because he's going away saturday. I almost feel rejected. Hey ho, guess what no appointments tomorrow a whole clear day to do my work and a 40th in the evening. Almost normal. Next week.
Oncology appt monday, portacath tuesday, ovary operation wednesday, recover thursday, team meeting all day friday....
Till next time x
A lot has happened the last couple of days, first of all went to see the gynecologist yesterday, I didnt realise that what he needed to do was quite so drastic, involves surgery and cutting holes all over my tummy, at least they are small i suppose. Apparently i'm the youngest person hes ever seen with this cancer and so whilst he's done this type of operation i am making medical history. The other consultant wants to come and watch, bizarre, i mean personally i'd rather be watching 24 or something. Need to take blood, forget it poor nurse fails miserably and asks me to come back later.
I then visited possibly the most depressing place i've ever been to for my "mould". Basically putty between the butt cheeks, very nice. St Lukes Cancer Center, unfortunately a place i'm going to have to visit every darn day from now on.
Then back to reality, FY'11 planning again in the afternoon, actually it was a refreshing change from Cancer talk and we got a lot done so good acheivement. Quite late by this point but hospital still awaits my blood so off i go, success this time, another appointment ticked off the list.
Friends came to see me last night, lovely evening, bit tearful in places but really nice although did have a incy bitty headache this morning when i woke up, thanks Michelle for dragging me to the games room ;-)
Then panicked as they never seem to be able to get into my veins at the minute (dehydrated!)and was due for the special radiotherapy CT scan today. Drank gallons of water to rehydrate and off we went back to St. Luke's. Some little tattoo's today (so they can line you up in the same place each day) dye flushed through the veins and some barium up the bottom. Think thats a good summary. OK another thing ticked off the list.
Sat on a bench and ate a bath bun afterwards, highlight of the day ;-) Phil dragged me into the mini garage to cheer me up and get me thinking about something else other than trying to tell connor my "news". Just got to get rid of my car now, actually very excited.
Darned internet got in the way after that, took me about two hours to get reconnected, just about managed to get Connor to swimming in between. Connor asked me why i had a plaster on my arm, here goes i think, " we'll chat about it when we get home i say, i had to go to the doctors today".
So I tell Connor, and how did he take it? no bloomin' reaction hardly, well not externally or yet i mean i look the same right so maybe he cant absorb it. Phil says have you mentioned the "C" word, i admit no, he says ive got to tell connor, so i do, reaction, oh you've got Cancer will you lose your hair? I reassure him probably no and he says "can i have some ribena mummy". Literally still no reaction at all, all that in my head and nothing i guess we may see something later but its almost an anticlimax, can daddy put him to bed because he's going away saturday. I almost feel rejected. Hey ho, guess what no appointments tomorrow a whole clear day to do my work and a 40th in the evening. Almost normal. Next week.
Oncology appt monday, portacath tuesday, ovary operation wednesday, recover thursday, team meeting all day friday....
Till next time x
Tuesday, April 20, 2010
Tough day today!
Thought i was coping really well today, went to all managers meeting all morning, FY'11 planning all afternoon, left the office late and fell completely apart after connor said at bed time, "i love you mummy, what would you like to talk about?"
Everyone has been so lovely and supportive and keep telling me how well i am coping but i dont really feel like that, tonight i just want to cry and cry, so so real and very very scary, sorry if you are reading this, i know its not going to be of much comfort when i am falling apart before this thing even begins.
Hopefully tomorrow is another day but got meeting with gyno and mold (or is that mould, dont forget the sense of humour right) in the morning to remind me of what lies ahead. Then CT scan on thursday, medical on monday, operation on ovaries on wednesday and portacath to be inserted on thursday. Phew.
See you soon.
T
Everyone has been so lovely and supportive and keep telling me how well i am coping but i dont really feel like that, tonight i just want to cry and cry, so so real and very very scary, sorry if you are reading this, i know its not going to be of much comfort when i am falling apart before this thing even begins.
Hopefully tomorrow is another day but got meeting with gyno and mold (or is that mould, dont forget the sense of humour right) in the morning to remind me of what lies ahead. Then CT scan on thursday, medical on monday, operation on ovaries on wednesday and portacath to be inserted on thursday. Phew.
See you soon.
T
Monday, April 19, 2010
Appointments and more appointments!
Monday 19th April, 2010
Thursday i hear it may be up to 28 days until i start treatment, which seems depressingly long out but by Friday, Saturday i'm thinking its great i can plan all these people to see, get fit do all the FY'11 planning and just generally get my life together and hey 28 days isnt so long plus a read a few "anal" blogs and scare myself half to death.
By this morning was in complete panic as started getting phone calls with appointments for this week and rumours of treatment starting on the 29th April. Cripes thats only 10 days! Anyway seems it may be the monday afterwards (thats a bank holiday so maybe not then!). Whatever, it now seems very close and there are a lot of appointments between now and then. (portacat, CT scan, mould appointment, ovaries moving, all in a day in the life of Mrs W)
Best thing do some exercise, can you believe it takes the thought of not being able to do something to make me do something. Ran 4.5 miles round virginia water lake yesterday morning, felt tough so did it again today, 5 mins off my time. Can you believe i'm sick at all, its completely surreal.
One thing, i know it sounds cliched but i noticed things i wouldnt normally bother with and i saw the beauty in them, a young woman lying with her baby on the side of the river bank, the sun beating down reflected off the lake, and then, a huge POO, the moment was shattered, blooming dog owners, nearly stepped in it. ;-) I also smiled and hello to everyone i saw, quite a few smiled and said hello back the others obviously thought i was some raving looney tunes.
Emotions up and down and not looking forward to telling connor, i guess thats going to be a job for this weekend bless him.
Back to the day job
Thursday i hear it may be up to 28 days until i start treatment, which seems depressingly long out but by Friday, Saturday i'm thinking its great i can plan all these people to see, get fit do all the FY'11 planning and just generally get my life together and hey 28 days isnt so long plus a read a few "anal" blogs and scare myself half to death.
By this morning was in complete panic as started getting phone calls with appointments for this week and rumours of treatment starting on the 29th April. Cripes thats only 10 days! Anyway seems it may be the monday afterwards (thats a bank holiday so maybe not then!). Whatever, it now seems very close and there are a lot of appointments between now and then. (portacat, CT scan, mould appointment, ovaries moving, all in a day in the life of Mrs W)
Best thing do some exercise, can you believe it takes the thought of not being able to do something to make me do something. Ran 4.5 miles round virginia water lake yesterday morning, felt tough so did it again today, 5 mins off my time. Can you believe i'm sick at all, its completely surreal.
One thing, i know it sounds cliched but i noticed things i wouldnt normally bother with and i saw the beauty in them, a young woman lying with her baby on the side of the river bank, the sun beating down reflected off the lake, and then, a huge POO, the moment was shattered, blooming dog owners, nearly stepped in it. ;-) I also smiled and hello to everyone i saw, quite a few smiled and said hello back the others obviously thought i was some raving looney tunes.
Emotions up and down and not looking forward to telling connor, i guess thats going to be a job for this weekend bless him.
Back to the day job
Friday, April 16, 2010
Monday, April 12, 2010
April 16th 2010 - Diagnosis and news of treatment, finally!
My friends and I always said I should write a book, a pretty colourful life would have made good content, I was supposed to write one at work but have been useless despite my great ideas and intentions so seems rather bizare to start writing one about the big "C".
I wanted to diarise my journeys, which i'm yet to travel most of, in some ways to remind myself and allow me to reflect on my experiences, good and bad as they happen and in other ways to help my friends and family (and anyone else out there thats interested) understand without having to ask awkward questions what happens and how it feels.
Rule No. 1 - Don't lose your sense of humour!
I've got a great start as i have anal cancer (no i havent done or had any of the things they suggest you may have done to get it i'm just darn unlucky i guess) so i can tell lots of bum jokes. Apparently less than 800 people a year get diagnosed in the UK, so i'm obviously very special. Always wanted to have something in common with Farrah, she started with anal cancer apparently.
Rule No. 2 - Never take your friends for granted !
I have awesome friends, i mean if any of you read this, you are truly truly awesome, and i know your love and support and my fighting spirit are going to get us through this!
If you dont know me though and are just in that waiting stage (oh yeah i know about that, I've been surfing the web since 23rd of Goddamn February trying to find answers) you probably want to know how this started and how it feels once you get diagnosed (sorry to say the waiting carries on) so here goes:
One MRI Scan, a CT scan, blood tests, a couple of biopsies under general, quite a few meetings with a consultant and a lot of distraught waiting later and finally i got the diagnosis.
Monday 12th April - met with consultant. He says its early and its very treatable which is positive, next stop referral to an oncologist, get used to it, everything is a few days in this game. Even under private healthcare it still takes weeks.
Radiotherapy down there is like getting sunburnt til you blister and then going out burning some more, expect pus and raw raw bits, the thought of doing a number two makes me want to pass out but i'll tell you what its really like when i start ;-) Anyway she said it will be awful but they will give me cream and strong painkillers.
Bonus Bit
* free sterilisation
* free hollywood (well apparently wherever you have radiotherapy the hair never grows back)
So there you have it the first installment, i'll let you know how i progress but not a lot to report for a while now.
Nutella (T)
x
I wanted to diarise my journeys, which i'm yet to travel most of, in some ways to remind myself and allow me to reflect on my experiences, good and bad as they happen and in other ways to help my friends and family (and anyone else out there thats interested) understand without having to ask awkward questions what happens and how it feels.
Rule No. 1 - Don't lose your sense of humour!
I've got a great start as i have anal cancer (no i havent done or had any of the things they suggest you may have done to get it i'm just darn unlucky i guess) so i can tell lots of bum jokes. Apparently less than 800 people a year get diagnosed in the UK, so i'm obviously very special. Always wanted to have something in common with Farrah, she started with anal cancer apparently.
Rule No. 2 - Never take your friends for granted !
I have awesome friends, i mean if any of you read this, you are truly truly awesome, and i know your love and support and my fighting spirit are going to get us through this!
If you dont know me though and are just in that waiting stage (oh yeah i know about that, I've been surfing the web since 23rd of Goddamn February trying to find answers) you probably want to know how this started and how it feels once you get diagnosed (sorry to say the waiting carries on) so here goes:
The Boring Bit
Tuesday Feb 23rd - bupa health assessment at reading. I took out the advanced one, thank you work for that option, for sure its going to have saved my life so please please if you can afford it or its provided through work go get one of those.
One MRI Scan, a CT scan, blood tests, a couple of biopsies under general, quite a few meetings with a consultant and a lot of distraught waiting later and finally i got the diagnosis.
Monday 12th April - met with consultant. He says its early and its very treatable which is positive, next stop referral to an oncologist, get used to it, everything is a few days in this game. Even under private healthcare it still takes weeks.
Thursday April 15th - met with Oncologist. Shes the specialist for the area, very matter of fact, its going to be horrid but at least only 5 weeks of treatment. It wont start for up to 28 days though (yes there we go again with another wait!) They need to do some stuff before we can start:
Operation to move my ovaries - otherwise i'll definitely go through the menopause, still might but they might be able to miss it with radiotherapy
Have a cap fitted to main vein in chest so they can hook up the chemo.
Radiotherapy CT scan - this is a special CT scan so they can plan where to target the treatment apparently.
Then we start with:
Week 1 - Chemo 24x7 but you are at home, you carry the bag around with you apparently. They are giving me fluorouracil otherwise known as 5FU and Mitomycin C, nice little combo but hopefully wont loose hair. Plus you have radiotherapy each day. Only takes 10 mins but the getting there and faffing around probably mean its a two hour round trip.
Week 2-4 - Radiotherapy each day
Week 5 - Same as week 1
Bobs your uncle, the little beauty should be all gone by then, heres hoping. In the past this would be guaranteed colostomy so i'm lucky really.
Gory BitRadiotherapy down there is like getting sunburnt til you blister and then going out burning some more, expect pus and raw raw bits, the thought of doing a number two makes me want to pass out but i'll tell you what its really like when i start ;-) Anyway she said it will be awful but they will give me cream and strong painkillers.
Bonus Bit
* free sterilisation
* free hollywood (well apparently wherever you have radiotherapy the hair never grows back)
So there you have it the first installment, i'll let you know how i progress but not a lot to report for a while now.
Nutella (T)
x
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